¿Qué son los cuidados Palliative a domicilio?

Palliative Care at Home: What are the Benefits?

Si usted o un ser querido padecen una enfermedad crónica, es probable que su familia se enfrente a una serie de retos. Está el desgaste físico de los síntomas de una enfermedad que limita la vida, pero también numerosos efectos emocionales y psicológicos al adaptarse a la "nueva normalidad". En resumen, se enfrenta a una enfermedad que puede afectar a todos los ámbitos de su vida.

Fortunately, there are a number of resources available to help you and your loved ones cope with a life-limiting disease. One important option to consider is palliative care, a specialized form of care that focuses on symptom management and improved quality of life for those managing chronic conditions.

Read on to learn more about what palliative care includes, the benefits of receiving palliative care at home, who’s eligible for palliative care, and the many ways this supportive resource may help your family.

What Is Palliative Care?

Palliative care is a specialized type of care for individuals living with a life-limiting illness. The goal of palliative care is to provide relief from pain and other symptoms, and enhance the quality of life for patients and their families. You may receive palliative care at home or in a facility.

When you receive palliative care, you’ll continue the treatments and medications meant to slow or cure your disease. Along with these treatments, your palliative care team — which may include nurses, doctors, home health aides, specialists, counselors, and faith leaders — will provide emotional, psychological, social, and spiritual support as you cope with your illness.

You can receive palliative care at any stage of disease, though it’s often recommended to start it at the time of diagnosis.

What are the Benefits of Receiving Palliative Care at Home?

You or your loved one can receive palliative care at a number of locations, including hospitals, nursing homes, outpatient clinics, and at home. There are many advantages to receiving palliative care from the comfort of your own home, including being in your own familiar space with your own belongings and not having to move to or commute to a facility.

Members of your palliative care team will come to you when it’s convenient for you, based on your schedule. In-home care may also make it easier and more comfortable for visitors who wish to spend time with you or your loved one at home.

Dependiendo de su enfermedad o de la de su ser querido y de su estado físico, es posible que necesite apoyo y equipos adicionales para gestionar una enfermedad en casa. Por ejemplo, si la movilidad es limitada, tendrá que garantizar un acceso fácil al cuarto de baño y una forma segura de salir de casa. Puede ser necesario instalar barras de sujeción, una silla de ducha, pasamanos y agarraderas de seguridad para garantizar la seguridad.

Deciding on the right place to receive palliative care is an individual choice for each family. Speak with your loved ones about their wishes to see if palliative care at home might be the right choice.

Palliative Care at Home: What to Expect

Your palliative care team can assist with various aspects of disease management. They can also provide emotional and spiritual support. Below are the ways palliative care at home can help, if you or a loved one is living with a chronic illness.

Planificación y coordinación de la asistencia

The first stage of palliative care is coming up with a treatment plan with your palliative care team. While every person’s plan will look different, some things you may discuss with your care team include:

• Sus síntomas
• Sus medicamentos y tratamientos actuales
• Cómo afecta su enfermedad a su vida cotidiana y a la de su familia.
• El grado de implicación de sus seres queridos en su cuidado
• La evolución prevista de su enfermedad
• Where you’d like to receive palliative care

Together with your loved ones, you and your doctor will decide whether you wish to receive palliative care at home or at a healthcare facility. You’ll also discuss strategies to prevent and ease pain and other symptoms, and the kinds of support you’ll need to improve your quality of life. Your palliative care team will also work closely with your primary care doctor to ensure proper coordination of care.

Gestión de los síntomas

Symptom management is one of the key aspects of palliative care. Your palliative care team will work with you to monitor and relieve your disease symptoms, and any side effects of the medications you’re taking. As part of your palliative treatment plan, you may receive referrals for specialists in pain management, psychology, or integrative medicine.

Se ofrecen servicios de nutrición y asesoramiento en salud mental. Si lo desea, también puede participar en la medicina complementaria y técnicas, como la meditación, ejercicios de respiración, Reiki, masajes y toque curativo para ayudar a mejorar sus síntomas y su bienestar general.

Asistencia a cuidadores

Caring for a loved one with a chronic illness can sometimes feel overwhelming. Palliative care can help ease the burden of caregiving by stepping in and assisting with various aspects of care.

For example, members of your palliative care team can help with everyday tasks like bathing, grooming, dressing, and eating, as well as medical needs like wound dressing and medication management.

Los familiares también disponen de asesoramiento y acceso a grupos de apoyo para ayudarles a afrontar la enfermedad de su ser querido.

Apoyo emocional y espiritual

Palliative treatment focuses on care of the whole self, so resources, including counseling, will be available to you to address the mental, emotional, and social stresses of having a life-limiting illness.

Si la religión o la espiritualidad desempeñan un papel en su vida, puede ponerse a su disposición un capellán u otro asesor espiritual para hablar de sus necesidades o preocupaciones.

Who Is Palliative Care For?

Anyone living with a serious illness is eligible for palliative care, regardless of age or stage of disease.

While it’s not an exhaustive list, here are some of the common diseases for which people receive palliative care:

• Cáncer
• Enfermedad de Alzheimer o demencia
• Cardiopatías
• Ictus
• Insuficiencia renal
• Enfermedad de Parkinson
• Fibrosis quística
• Enfermedad pulmonar obstructiva crónica (EPOC)
• Enfermedad pulmonar
• Enfermedad hepática terminal
• Esclerosis múltiple
• Esclerosis lateral amiotrófica (ELA)

Hospice and Palliative Care: What’s the Difference?

Hospice and palliative care often get confused, but they are not the same. The main difference is that with palliative care, you continue to receive treatment intended to stop or cure your disease, in conjunction with treatment meant to improve your quality of life.

Hospice care, sometimes called end-of-life care, is a form of care where the goal of treatment switches completely to comfort as you prepare for the end of life. When you enroll in hospice care, your doctor will stop administering curative treatment.

Anyone can enroll in palliative care at any stage of their disease, but hospice care is reserved for those whose doctor estimates they have six months or less to live.

FAQ for Home Palliative Care

Here are answers to some of the most frequently asked questions about palliative care at home.

Can You Live Alone for Palliative Care?

You can receive palliative care if you live alone. However, depending on the severity of your disease, it may be easier to move into a healthcare facility. Your doctor will discuss the pros and cons of each option, and help you decide the best location to receive palliative care.

How Do You Know When it’s Time for Palliative Care?

Doctors often recommend palliative care at the time of diagnosis. However, you can enroll in palliative care at any stage of a disease. If you’re feeling stressed or overwhelmed from the symptoms of your illness or the impact it’s having on your life, palliative care can be a good choice.

How Long Will I Live on Palliative Care?

People can remain on palliative care for weeks, months, or even years. It’s even possible to get better and no longer need palliative care.

Resumen

Living with a chronic illness can take a toll on your entire family, but palliative care can help ease the burden on both you and your loved ones. Palliative care at home can be an excellent way to focus on your physical, mental, emotional, and spiritual health while you’re living with a life-limiting illness.

La familia de empresas Sage está aquí para responder a cualquier pregunta que pueda tener.